After just a few months of existence, one thing is clear to me, there is a significant need for an organization like ours. The numbers don’t lie. In only five months, we’re already received over 90,000 hits on our website from over 77 countries around the world. And even more compelling are the personal interactions I’ve had with survivors, caregivers and those who have lost loved ones to this terrible disease. Almost on a daily basis, I get a message from someone thanking us for starting this organization. Just knowing there are others with the same fear, anxiety, hope and determination is comforting and inspiring.
The battle ahead of us is huge. As I mentioned in our newsletter, the American Cancer Society revealed that gastric cancer receives the least federal funding of any type of cancer. For every cancer-related death, only $1,168 federal research dollars are spent on gastric cancer, versus $18,870 for cervical cancer and $14,095 for breast cancer. What this tells me is that (at least in the short term) we need to take matters into our own hands. And we’re already begun to do that.
In addition to launching our website and forming multiple forums to connect people, we’re raised enough funds to begin building the registry. Also, our technical and scientific volunteer teams are well on their way to architecting our genomic sequencing system. These two actions coming together will allow us to being analyzing gastric cancer cells and provide researchers with demographic, tumor and blood data to study the disease in far greater detail.
Like this blog, we are only at the beginning of a very long journey. I intent to make it a successful one for all of us, so please stay tuned and connected. And please engage by sharing your comments, suggestions and recommendations. We’re all in this together so we want to hear from you.
Be well,
JP
PS - In addition to this blog, from more interactive information, please be sure to visit our Facebook Fan page and LinkedIn group.
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