Thanks for a job well done

One of the many benefits of starting an organization like the Gastric Cancer Fund is that you connect with people you would have never met otherwise and they amaze you with tremendous acts of generosity and kindness. Just over a month ago, I was contacted by Ali Mann, a friend of Ashley Silverston. Ashley’s father, Jan Silverston, was a remarkable and unforgettable man who had recently lost his battle against gastric cancer. In his memory and honor, Ashley’s friends – Ali, Jamie Glastein, Jessica Victor, and Jessica Roitman – organized a benefit in New York City on August 24th to raise money for the Gastric Cancer Fund.

A beautiful evening was shared by over 200 guests including Jan’s wife Cindy, children Jason and Ashley, and many of their friends and extended family. Everyone at the event contributed money towards the GCF in memory of Jan and in honor of the great man that he was. The benefit generated $8,500 in onsite and online donations and the event organizers are hoping to make this an annual event.

I’d like to personally thank Ali, Jamie, Jessica V. and Jessica R. for all their work on the event and to Jan’s family for their willingness to share the proceeds of this event with our organization. You all did an amazing job of honoring Jan’s life and legacy and helping to fight this terrible disease so that others will not have to experience the same loss. To see pictures from the event, please visit our Facebook fan page.

While we are on the topic of events, I also want to let folks in Atlanta know about an event that gastric cancer survivor and GCF board member Hans Rueffert is hosting tomorrow, September 29th, at PRIME in Atlanta. Hans will be signing copies of his cookbook, “Eat Like There's No Tomorrow,” and donating 25% off all book sales to our organization. In addition, the owners at PRIME will donate 10% of all dinner tickets to GCF. If you are in or near Atlanta tomorrow, please make an effort to show up. For more information, please click here.

Be well,

JP

Join the Team

I’ve always been a “team player.” I enjoy team sports, group activities and interacting with people rather than going it on my own. If you’ve ever taken the Myers-Briggs Type Indicator (MBTI), I’m a classic "E" for extrovert. Not just because I like to talk (which I do!), but I get my energy from being around and interacting with people.

Struggling through my cancer diagnosis and treatment, I was fortunate to have a great team around me. My wife and kids (the best possible motivation to fight for every single day), family, friends, medical team, work community, etc. It really was the thing that got me through my time in the hospital, the long days of chemo and radiation, and on to my current state of recovery.

Even though I literally couldn’t have asked for a better team, I longed to reach out for folks who were going through the same thing I was: fighting through the pain, fear, anxiety, bizarre side effects of life with half or no stomach, etc. When I met my first “fellow gastric cancer patient” I felt like we were long lost brothers. Just to know someone else was out there going through the same thing made this crazy disease a bit more bearable.

That is one of the primary reasons I started this foundation, to connect with folks out there going through this battle. Because cancer is never simple, there are always differences (age, stage, treatment, etc), but we’re all in the gastric cancer boat together. And it’s not just those with the disease. The first thing my wife asks if I meet a fellow survivor, “oh, can I talk to their wife/husband?” Survivors aren’t the only ones that need help and want to connect.

I shared in my first post how excited I am that we are getting lots of traffic on the website, and it’s great. But even more important to me are the individual emails and phone calls I get from folks, making that personal connection. If it’s someone that is a long time survivor, it gives me hope that I can live a long and productive life. If it’s someone that is struggling either physically or emotionally, it inspires me to continue raising funds or building the registry so that we can help get more information and research done to fight the disease. And if it’s a family member that has lost a loved one, I want to make sure that this is an organization that will always remember those courageous people and make sure their deaths were not in vain.

So, I’m thanking you all for becoming part of the team and helping me personally and this organization fight this disease.

Be well,

JP

Welcome!

Welcome to the Gastric Cancer Fund blog. My hope is that this blog will serve as a dynamic way for our organization to communicate with the gastric cancer community. I want to share our progress in the pursuit of our mission to improve the lives of those affected by gastric cancer and working with leading researchers to find a cure. Also, I hope to keep you up to speed on news, research breakthroughs, survivorship tips, upcoming events, ways to get involved and much more.

After just a few months of existence, one thing is clear to me, there is a significant need for an organization like ours. The numbers don’t lie. In only five months, we’re already received over 90,000 hits on our website from over 77 countries around the world. And even more compelling are the personal interactions I’ve had with survivors, caregivers and those who have lost loved ones to this terrible disease. Almost on a daily basis, I get a message from someone thanking us for starting this organization. Just knowing there are others with the same fear, anxiety, hope and determination is comforting and inspiring.

The battle ahead of us is huge. As I mentioned in our newsletter, the American Cancer Society revealed that gastric cancer receives the least federal funding of any type of cancer. For every cancer-related death, only $1,168 federal research dollars are spent on gastric cancer, versus $18,870 for cervical cancer and $14,095 for breast cancer. What this tells me is that (at least in the short term) we need to take matters into our own hands. And we’re already begun to do that.

In addition to launching our website and forming multiple forums to connect people, we’re raised enough funds to begin building the registry. Also, our technical and scientific volunteer teams are well on their way to architecting our genomic sequencing system. These two actions coming together will allow us to being analyzing gastric cancer cells and provide researchers with demographic, tumor and blood data to study the disease in far greater detail.

Like this blog, we are only at the beginning of a very long journey. I intent to make it a successful one for all of us, so please stay tuned and connected. And please engage by sharing your comments, suggestions and recommendations. We’re all in this together so we want to hear from you.

Be well,

JP

PS - In addition to this blog, from more interactive information, please be sure to visit our Facebook Fan page and LinkedIn group.